WE ARE

LONG COVID

Our Partners

Our Mission

Our mission is to bring together patients with Long COVID, practitioners, caregivers, and southeast Michigan community members in a joint effort. Together, we are navigating our journey to better health, fostering an environment where experiences are shared, trustworthy knowledge is exchanged, and every voice is heard.

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FREQUENTLY ASKED QUESTIONS

Our mission is to bring together patients with Long COVID, practitioners, caregivers, and southeast Michigan community members in a joint effort. Together, we are navigating our journey to better health, fostering an environment where experiences are shared, trustworthy knowledge is exchanged, and every voice is heard.

LONG COVID SYMPTOMS

Most Common Symptoms

Fatigue

Fatigue is a lingering tiredness that is constant and limiting. With fatigue, you have unexplained, persistent, and relapsing exhaustion.

Brain Fog

Brain fog is a common group of symptoms that affect how you think, remember and concentrate. It can make doing ordinary tasks challenging.

Post-exertional malaise

Post-exertional malaise (PEM) refers to a worsening of the illness after physical or cognitive exertion which was previously tolerated.

Pain/Body Aches

ody aches can result from tiredness or exercise and commonly occur with infections.

Heart palpitations

Heart palpitations are feelings of having a fast-beating, fluttering or pounding heart

Shortness of breath

Shortness of breath is the uncomfortable feeling that you are running out of air or are not able to breathe deeply enough.

Nausea

Nausea is the sensation of having to vomit or having the urge to vomit. Vomiting may or may not occur as a result of nausea, an unsettled feeling in the stomach or queasiness.

Depression/anxiety

Anxiety is characterized by excessive worry and fear, while depression is marked by persistent sadness and a loss of interest.

Loss of smell

Losing taste and smell can be an early symptom of a COVID-19 infection. A complete loss of smell (anosmia) or loss of taste (ageusia) is rare.

Additional Symptoms

Pins and needles

‘Pins and needles’ are a sensation of uncomfortable tingling or prickling, usually felt in the arms, legs, hands or feet.

Migraines

A migraine is a headache that can cause severe throbbing pain or a pulsing sensation, usually on one side of the head.

Stomach pain

A discomfort that you feel in your belly area.

Sleep issues

Problems can include insomnia, daytime sleepiness, waking up several times a night, or not feeling refreshed in the morning.

Cough

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Fever

Increased body temperature, sweats, and/or chills

Hair loss

Hair loss, also known as alopecia or baldness, refers to a loss of hair from part of the head or body.

Earaches

COVID-19 can cause an earache, with effects that include ear pain, hearing loss, or dizziness.

Chest pain

 A dull ache, a crushing or burning feeling, a sharp stabbing pain or a pain that radiates to your neck or shoulder.

Rashes

These may be large, flat blotches, or itchy, raised spots or welts called hives on arms, legs or on the center part of the body, called the trunk.

Changes in menstrual cycle

Experiencing small, temporary changes in menstrual cycle length.

OUR LONG COVID STORIES